Resources

Southern Arizona Resources 

  • DS Network, Inc., our mission is educate, support and advocate for those in our community  impacted by Down syndrome.  DS Network will achieve this goal through an open, supportive and collaborative network that will connect individuals and families with needed  resources and information.  Located in Tempe, AZ.
  • Division of Developmental Disabilities The Arizona Department of Economic Security promotes the safety, well-being, and self sufficiency of children, adults, and families.
  • Rehabilitation Services Administration (RSA) Vocational Rehabilitation We strive to support the DES mission of promoting the safety, well-being, and self sufficiency of children, adults, and families by working with individuals with disabilities to achieve increased independence and/or gainful employment through the provision of comprehensive rehabilitative and employment support services in a partnership with all stakeholders
  • Child & Family Resources is a private, community-based, non-profit agency offering 31 programs throughout Southern Arizona. At least 92% of funding goes toward programs and services benefiting 39,000 families and children each year. The agency is headquartered in Tucson with satellite offices in Phoenix, Sierra Vista, Douglas, Safford, Bullhead City, Kingman, Nogales, Willcox, and Yuma.
  • Tu Nidito Children and Family Services provides comfort, hope and support for children and families whose lives have been impacted by a serious medical condition or death. Through its array of support groups and individual services Tu Nidito provides emotional, social, and educational tools to children and families and empowers them with strength and skills for the future.
  • Sharing Down Syndrome Arizona  The Mission of Sharing Down Syndrome Arizona is to educate and empower, but especially give hope to individuals who have Down syndrome, and their families who love them, so these children may grow up to become independent self-advocates. We promote positive acceptance and understanding and inclusion is embraced by all as we celebrate each life.
  • Tucson Challenger Little League Established in 1990, Tucson Challenger Little League provides children and young adults with mental and/or physical disabilities the opportunity to participate in Little League Baseball.
  • MIKID is certified as a Community Service Agency (CSA) with service
    locations in Phoenix, Tucson, Eagar and Yuma. In addition, MIKID staff work from their
    homes in other areas of the state to reach families through-out Arizona.  MIKID is the state chapter of the Federation of Families for Children’s Mental Health. MIKID is a member of NAMI Arizona, of the Arizona Council of Human Service Providers, of the Mental Health Awareness Coalition and of PAFCO (Protecting Arizona’s Family Coalition)
  • Tucson Community Connections  We offer our services for people who experience one or more of the following life challenges: Down syndrome, autism, cerebral palsy, epilepsy, or intellectual disabilities.  In partnership with the people we serve, our mission is to seek out opportunities for self discovery and self-expression, by building a network of connections and resources in our community, offering meaningful skill building and developing deep, lasting relationships.  Our Day Program is free to individuals involved with DDD.  Contact: Colleen Peters, (520) 603-5996.
  • AZ Links is the website of Arizona’s Aging and Disability Resource Consortium (ADRC). AZ Links helps Arizona seniors, people with disabilities, caregivers and family members locate resources and services.
  • Special Olympics of Tucson provides every person with intellectual disabilities a place of welcome, acceptance and the chance to be their best. Special Olympics Arizona is made up of passionate, committed individuals from  every walk of life, who recognize the value and unique gifts of people  with intellectual disabilities. And who, together, share the common  belief in dignity, equality and opportunity for ALL people.
  • The Arizona Early Intervention Program (AzEIP) is Arizona’s statewide, interagency system of supports and services for infants and toddlers with developmental delays or disabilities and their families.
  • Office for Children with Special Health Care Needs To continuously improve comprehensive systems of care that enhances the health, future and quality of life for children and youth with special health care needs and their families.
  • Reachout Pregnancy Center • Free Pregnancy Tests • Sonograms, so you can see your unborn baby • Pre-natal counseling and guidance • Adoption information and referrals • Counseling with parents, boyfriend or husband, as needed
    • Referrals for medical and employment planning • Help and guidance in all related areas • Clothing and Diapers • Reachout Healing Post Abortion Counseling

National & World Organizations

  • F.R.I.E.N.D.S., or Family Resource, Information & Education Network for Down Syndrome is a 501(c)(3) non-profit group of parents re-formed in 1999 in Frederick County, Maryland to: Be a support and resource group for expectant parents, new parents and extended families of babies born with Down Syndrome.
  • R-Word Spread the Word to End the Word  Act  Now! Pledge your  support to eliminate the demeaning use of the R-word.
  • International Mosaic Down Syndrome Association “IMDSA is designed to support any family or individual whose life has been touched by mosaic Down syndrome by continuously pursuing research opportunities and increasing awareness in the medical, educational and public communities throughout the world.”
  • Dads Appreciating Down Syndrome, or D.A.D.S., is a committee or community group (within a local Down syndrome support organization) of fathers of children who happen to have Down syndrome. We hesitate to call our self a “support group”, even though we do, in many ways, support each other.
  • Gigi’s Play House mission is to increase positive awareness of Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.
  • Raising Special Kids is a non-profit organization of families helping families of children with disabilities and special health needs in Arizona.
  • Special Olympics provides every person with intellectual disabilities a place of welcome, acceptance and the chance to be their best. Special Olympics Arizona is made up of passionate, committed individuals from  every walk of life, who recognize the value and unique gifts of people  with intellectual disabilities. And who, together, share the common  belief in dignity, equality and opportunity for ALL people.
  • Golf For Life Our goal is to facilitate a network of regional and national golf clinics and
    competitions  exclusively for individuals who have Down syndrome. We are working
    closely with the National Down Syndrome Congress (NDSC) and the Professional
    Golfers’ Association of America (PGA).
  • The Institute on Community Integration is a federally designated University Center for Excellence in Developmental Disabilities. Through collaborative research, training, and information sharing, the Institute improves policies and practices to ensure that all children, youth, and adults with disabilities are valued by, and contribute to, their communities of choice.
  • Down Syndrome Foundation Orange County    Down Syndrome Foundation’s most innovative project is development and implementation of The Learning Program. The Learning Program uses current research on best practices and effective teaching strategies to improve the educational potential of children with Down syndrome. The Learning Program is delivered in Orange County, California.  DSF collaborates with other Down syndrome organizations to assist and support them in developing Learning Program models that fit the needs of their members.  DSF offers free Learning Program materials to families and educators throughout the United States and abroad. DSF’s Learning Program materials are available free of charge to parents, educators and therapists through this website.  DSF lectures on educational topics through National Down Syndrome Congress, and other Down syndrome associations and parent groups. DSF works locally and nationally with parents and educators to support effective instruction and improve educational outcomes.  New Parent Guide Down Syndrome Foundation developed Orange County’s first parent education program designed to help parents of children with Down syndrome navigate the first five years of their child’s life.
  • Circle 21 Circle 21 is a non-profit from Canada established 2012
  • The National Down Syndrome Congress (NDSC) is a not-for-profit organization founded in 1973. The NDSC is governed by a twenty-two member Board of Directors composed of parents and family members of individuals with Down syndrome, self-advocates and other individuals involved with people with Down syndrome.The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information dissemination on all aspects of Down syndrome. The NDSC is financially supported primarily through membership dues and individual contributions.
  • Down Syndrome Pregnancy – Information for expectant parents  Congratulations on your pregnancy, and welcome to our community. If you have just received a confirmed or suspected diagnosis, you may be feeling very afraid, alone, and overwhelmed. We offer information that can help.
  • National Down Syndrome Society The National Advocate for People with Down Syndrome Since 1979 The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
  • National Down Syndrome Adoption Network  Our mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family
  • The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009.
  • People First Language One of the most serious consequences . . . is the dehumanizing negative evaluations we attach to people when they have been plastered with a damning label. Because we have slapped a label on them, we assume we have identified the essence of this person semantically branded . . . Thomas Merton (1948) coined the term “self-fulfilling prophecy” which has become the focus of numerous studies . . . The power of labels to stigmatize, create self-fulfilling prophecies and reduce or enhance self-images is awesome . . . Until we learn to appreciate the power of language and the importance of using it responsibly, we will continue to produce negative social consequences for those victimized by dangerous language habits.
  • Kids Enjoy Exercise Now (KEEN) is a national, nonprofit volunteer-led organization that provides one-to-one recreational opportunities for children and young adults with developmental and physical disabilities at no cost to their families and caregivers. KEEN’s mission is to foster the self-esteem, confidence, skills and talents of its athletes through non-competitive activities, allowing young people facing even the most significant challenges to meet their individual goals.
  • Best Buddies® Best Buddies  Friendship Leadership Development and Jobs is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD).

 

Resource Links

  • Assistive Technology  Arizona Access Technology Program (AzTap) Our mission is to promote awareness of, access to, and acquisition of assistive technology for persons with disabilities. As required by the Assistive Technology Act, our services encompass seven key activities including, but not limited to: equipment demonstrations, short-term equipment Loans, equipment reutilization, alternative financing, public awareness, training and technical assistance including transition services, interagency coordination and collaboration
  •  The Down Syndrome Test Prenatal Testing Pamphlet  fulfills an unmet need for pregnant women and famlies, pamphlet highlights new blood tests are for high-risk pregnancies.  How the pamphlet was created, future updates and distributation.The purpose of the Down Syndrome Prenatal Testing Pamphlet is to provide current, accurate, and free information about Down syndrome to pregnant women. The pamphlet is available in English and Spanish, and in both print and electronic formats. The English and Spanish pamphlets can be viewed or downloaded on this website.The Global Down Syndrome Foundation and the National Down Syndrome Congress believe this jointly created and distributed pamphlet will fulfill a critical need for pregnant women and families.
  • Social Security Administration (SSA) The Supplemental Security Income (SSI) program  pays benefits to disabled adults and children who   have limited income and resources.
  • Exceptional Student Services Exceptional Student Services (ESS) is accountable for ensuring that all special education programs, regulations, and procedures are in compliance with the Individuals with Disabilities Education Act (IDEA) and eligible children and youth with disabilities are receiving a free appropriate public education (FAPE). ESS provides exceptional customer service and technical assistance while enforcing the state and federal special education mandates to promote continuous improvement throughout the state
  • Community partnership of Southern Arizona Additional services are now available to CPSA members who are not eligible for AHCCCS and who have a Serious Mental Illness (SMI), thanks to additional state funding approved by the Governor and Legislature which began on July 1, 2012. These services focus on helping members become independent and improve their quality of life, supporting the goals of skill-building, self-management,
    peer and family support, employment and living successfully in the community
  • Down syndrome Prenatal Testing The pamphlet is for pregnant women who are considering, or who have had, prenatal testing for Down syndrome. It provides important information about prenatal testing and facts about Down syndrome.
  • The ARC for people with intellectual and developmental disabilities Achieve with us.®    The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
  • Wrightslaw Yellow Pages for Kids Directiry of Service Providers  Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates, and attorneys for children with disabilities on the Yellow Pages for Kids for your state. You will also find special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations, and government programs for children with disabilities.
  • Institute on Disability / UCED The Center for Housing and New Community Economics (CHANCE) was established in March of 2001. CHANCE’s mission was to improve and increase access to integrated, affordable, and accessible housing coordinated with, but separate from, personal assistance and supportive services. CHANCE’s purpose was to offer alternatives to approaches that segregate, congregate, and control people with disabilities. The IOD worked in partnership with ADAPT in all aspects of the Center. ADAPT is a national organization that focuses on promoting services in the community for people with disabilities.
  • The Consortium for Citizens with Disabilities  The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability
    organizations working together to advocate for national public policy that
    ensures the self-determination, independence, empowerment, integration and
    inclusion of children and adults with disabilities in all aspects of
    society.
  • SAFELINK WIRELESS® service is a program for Income eligible households provided by TracFone Wireless, Inc. In order to participate in the SAFELINK WIRELESS® service, persons must meet certain eligibility requirements set by each State where the service is to be provided. These requirements are based on a person’s participation in a state or Federal support programs or by meeting the Income Poverty Guidelines as defined by the U.S. Government. SAFELINK WIRELESS® service is limited to one person per household.
  • Housing and mortgages for people with disabilities This guide has been created to help individuals living with  disabilities, and their family members, in the process of buying a home of their own. Here you can learn more about the five important steps in buying a home and about financial assistance programs that are available for you living with disabilities, who want to buy a home. 

 

 

 

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